偶尔的人祭：医学实验与说不的代价（有声书）

English | May 14, 2024 | ASIN: B0D33S79B8 | M4B@128 kbps | 11h 3m | 604 MB

Shocking cases of abusive medical research and the whistleblowers who spoke out against them, sometimes at the expense of their careers.

The Occasional Human Sacrifice is an intellectual inquiry into the moral struggle that whistleblowers face and why it is not the kind of struggle that most people imagine.

Carl Elliott is a bioethicist at the University of Minnesota who was trained in medicine as well as philosophy. For many years he fought for an external inquiry into a psychiatric research study at his own university in which an especially vulnerable patient lost his life. Elliott’s efforts alienated friends and colleagues. The university stonewalled him and denied wrongdoing until a state investigation finally vindicated his claims.

His experience frames the six stories in this book of medical research in which patients were deceived into participating in experimental programs they did not understand, many of which had astonishing and well-concealed mortality rates. Beginning with the public health worker who exposed the Tuskegee Syphilis Study and ending with the four physicians who in 2016 blew the whistle on lethal synthetic trachea transplants at the Karolinska Institute, Elliott tells the extraordinary stories of insiders who spoke out against such abuses, and often paid a terrible price for doing the right thing.

揭露虐待性医学研究的惊人案例以及那些站出来反对它们的人士，有时甚至牺牲了他们的职业生涯。 《偶尔的人类献祭》是一场对揭露者所面临道德斗争的智力探索，这场斗争并非大多数人想象中的那种斗争。 卡尔·埃利斯（Carl Elliott）是明尼苏达大学的一名生物伦理学家，他也接受过哲学训练。多年来，他一直在为自己所在大学的一次精神病学研究项目进行外部调查而奋斗，在该项目中，一名特别脆弱的患者失去了生命。埃利斯的努力令朋友和同事疏远。该大学一直拖延并否认错误的存在，直到州级调查最终证实了他的说法。 他的经历定义了这本书中的六篇关于医学研究的故事，其中涉及欺骗患者参与他们不了解的实验项目，并且这些项目的死亡率惊人且隐藏得很巧妙。从揭露塔斯基吉梅毒研究项目的公共卫生工作者开始，到2016年四位医生在卡罗林斯卡学院揭发致命合成气管移植手术而受到严厉惩罚为止，埃利斯讲述了那些站出来反对此类滥用的内部人士的故事，他们经常为此付出巨大的代价。 （注：文中提到的研究项目和案例均发生在真实的历史背景中，旨在探讨医学伦理问题。）

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