偶尔的人祭：医疗实验和说“不”的代价

English | May 14th, 2024 | ISBN: 1324065508 | 368 pages | True EPUB | 1.54 MB

Shocking cases of abusive medical research and the whistleblowers who spoke out against them, sometimes at the expense of their careers.

The Occasional Human Sacrifice is an intellectual inquiry into the moral struggle that whistleblowers face, and why it is not the kind of struggle that most people imagine.

Carl Elliott is a bioethicist at the University of Minnesota who was trained in medicine as well as philosophy. For many years he fought for an external inquiry into a psychiatric research study at his own university in which an especially vulnerable patient lost his life. Elliott's efforts alienated friends and colleagues. The university stonewalled him and denied wrongdoing until a state investigation finally vindicated his claims.

His experience frames the six stories in this book of medical research in which patients were deceived into participating in experimental programs they did not understand, many of which had astonishing and well-concealed mortality rates. Beginning with the public health worker who exposed the Tuskegee Syphilis Study and ending with the four physicians who in 2016 blew the whistle on lethal synthetic trachea transplants at the Karolinska Institute, Elliott tells the extraordinary stories of insiders who spoke out against such abuses, and often paid a terrible price for doing the right thing.

揭露虐待性医学研究以及那些站出来反对它们的举报人的一些触目惊心案例，有时甚至牺牲了他们的职业生涯。 《偶尔的人类献祭》是对举报人所面临的道德斗争进行了一次智力探索，并揭示了这种斗争并不像大多数人想象的那样常见。 卡尔·埃利斯是明尼苏达大学的一名生物伦理学家，他在医学和哲学方面受训。多年来，他一直为自己所在大学的一个精神病学研究项目中的一个特别脆弱患者失去生命而发起外部调查。埃利斯的努力让他的一些朋友和同事疏远了他。学校一再拒绝他的指控，并否认有过错行为，直到州级调查最终支持了他的说法。 这本书中的六个医学研究故事就与这些情况有关，其中患者被欺骗参与了他们不了解的实验项目，许多项目的惊人且精心隐藏的死亡率令人震惊。从揭露塔斯基吉梅毒研究项目的公共卫生工作者开始，到2016年在卡罗林斯卡研究所揭露致命合成气管移植医生四人组的故事结束，《埃利斯讲述的是那些向这些滥用行为发起挑战的内部人士的故事，他们经常为此付出了可怕的代价，做了一件正确的事情。

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