《失去女儿的57个周五：寻找出路》

English | April 2nd, 2024 | ISBN: 1958972258 | 266 pages | True EPUB | 2.19 MB

"A wondrous, hopeful, heart-breaking witness to one of the darkest journeys imaginable... This will be one of those rare books that people re-read, think about, and encourage others to read." —Bruce D. Perry, M.D., Ph.D, author, with Oprah Winfrey, of What Happened to You

"I love this book. I absolutely could not put it down. It is beautifully written and cuts to the very heart of life and love: The story of Havi's short, beautiful life and early death from Tay-Sachs is harrowing, heartbreaking, uplifting, profound and sometimes funny. Havi will charm the socks off you."—Anne Lamott

Life is unfolding as planned for Myra Sack and her husband Matt until their beautiful year-old daughter Havi is diagnosed with Tay-Sachs, a fatal neurodegenerative disease, and given only a year to live. Myra and Matt decide to celebrate Havi's short life and vow to show her as much of the world as they can, surrounded by friends and family who relocate to be in Havi's orbit. Tapping their Judaism, they transform Friday night Shabbats into birthday parties—"Shabbirthdays"—to replace the birthdays Havi will never have.

一本奇妙而又令人希望与心碎的见证，记录了想象中最黑暗的一段旅程……这将是一本人们会反复阅读、深思并鼓励他人去读的罕见书籍……——Bruce D. Perry, M.D., Ph.D，与奥普拉·温芙rey合著《发生了什么》的作者 “我爱这本书。我简直不能放下它。它的文笔优美并且直指生命的本质：Havi那短暂而美丽的一生以及她早逝的故事既令人惊骇又心碎、鼓舞人心且深刻，并且有时又是滑稽的。Havi会给你带来极大的乐趣。”——安妮·拉莫特 我的孩子梅塔和我计划一切如愿进行，直到我们的可爱一岁女儿希瓦被诊断出患有导致不可逆转神经退行性疾病的唐氏综合症，仅给一年的生命期限。米娅和梅塔决定庆祝希瓦短暂的一生，并承诺尽可能多地向她展示这个世界的精彩之处，在朋友和家人的陪伴下，我们搬到了希瓦的身边。我们以犹太教为灵感来源，在周五夜晚的安息日变成了生日聚会——“谢拉比兹”（Shabbirthday）来取代希瓦永远不会再有的生日。

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