活数据:解析健康生物传感
As individuals increasingly seek ways of accessing, understanding and sharing data about their own bodies, this book offers a critique of the popular claim that ‘more information’ equates to ‘better health’. In a study that redefines the public, academic and policy related debates around health, bodies, information and data, the authors consider the ways in which the phenomenon of self-diagnosis has created alternative worlds of knowledge and practises which are often at odds with professional medical advice. With a focus on data that concerns significant life changes, this book explores the potential challenges related to people’s changing relationships with traditional health systems as access to, and control over, data shifts.
随着越来越多的人寻求访问、理解和分享自己身体数据的方式,这本书对流行的观点提出了批判,即“更多的信息”意味着“更好的健康”。在一项重新定义了围绕健康、身体、信息和数据的公共、学术和政策相关辩论的研究中,作者们考虑了自我诊断现象如何创造出了与专业医疗建议相冲突的新的知识世界和实践。本书关注那些涉及重大生活变化的数据,探讨随着人们对数据访问权和控制权的变化而带来的人们与传统健康系统之间关系改变可能面临的潜在挑战。
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