康复的身体：疾病、残疾与生活写作

English | 1997 | 335 Pages | ISBN: 0299155609 | PDF | 26 MB

This is a provocative look at writing by and about people with illness or disability—in particular HIV/AIDS, breast cancer, deafness, and paralysis—who challenge the stigmas attached to their conditions by telling their lives in their own ways and on their own terms. Discussing memoirs, diaries, collaborative narratives, photo documentaries, essays, and other forms of life writing, G. Thomas Couser shows that these books are not primarily records of medical conditions; they are a means for individuals to recover their bodies (or those of loved ones) from marginalization and impersonal medical discourse. Responding to the recent growth of illness and disability narratives in the United States—such works as Juliet Wittman’s Breast Cancer Journal, John Hockenberry’s Moving Violations, Paul Monette’s Borrowed Time: An AIDS Memoir, and Lou Ann Walker’s A Loss for Words: The Story of Deafness in a Family—Couser addresses questions of both poetics and politics. He examines why and under what circumstances individuals choose to write about illness or disability; what role plot plays in such narratives; how and whether closure is achieved; who assumes the prerogative of narration; which conditions are most often represented; and which literary conventions lend themselves to representing particular conditions. By tracing the development of new subgenres of personal narrative in our time, this book explores how explicit consideration of illness and disability has enriched the repertoire of life writing. In addition, Couser’s discussion of medical discourse joins the current debate about whether the biomedical model is entirely conducive to humane care for ill and disabled people. With its sympathetic critique of the testimony of those most affected by these conditions, Recovering Bodies contributes to an understanding of the relations among bodily dysfunction, cultural conventions, and identity in contemporary America.

这是一部大胆的著作，探讨了与疾病或残疾有关的写作——尤其是艾滋病、乳腺癌、失聪和瘫痪等疾病的写作。这些作品通过讲述自己的生活来挑战与他们状况相联系的偏见，并且以个人的方式和立场进行。G. Thomas Couser讨论了自传、日记、合作叙事、照片纪录片、随笔以及其他类型的生平书写形式，他指出这些书籍并不是单纯记录医学状况的书籍；而是为个体恢复其身体（或爱人的身体）而设的一种手段，使之摆脱边缘化以及非个人化的医疗话语。回应美国近期疾病和残疾叙述的增长——如朱丽叶·惠特曼的《乳腺癌日记》、约翰·霍切布斯的《违法者》、保罗·莫内特的《借用的时间：艾滋病回忆录》以及露安·沃克勒的《失去言语：失聪在家庭中的故事》等作品——Couser探讨了个人选择写作疾病或残疾的问题，以及此类叙述中情节的作用；是否能实现某种圆满结局；谁有讲述的权利；哪种状况最常被书写；哪些文学传统最适合表现特定的状态。通过追踪我们这个时代新类型自传的发展轨迹，这本书探究了将疾病的考虑纳入生平书写 repertoire 的影响。此外，Couser 对于医疗话语的讨论加入了有关生物医学模型是否完全有利于为病人提供人性化护理这一当前辩论。通过其对受这些状况影响最深的人们的同情批评，《恢复身体》有助于理解当代美国中身体功能失调、文化惯例以及身份之间的关系。

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