《何去从？慢性疼痛和个人史以及不良医疗》

English | January 23, 2024 | ISBN: 1419747347 | True EPUB | 256 pages | 20.2 MB

“A humane and gripping work that illuminates how (and why) our treatments of chronic illness fail, and a devastating portrait of the ways our society fails to protect the bodies of its most vulnerable members.” —Melissa Febos, author of Girlhood, winner of the National Book Critics Circle Award

"Erin Williams' What's Wrong? is an utterly riveting, deeply moving, absolutely molecule-rearranging exploration of pain–individual and collective–suffused with wit, wonder, and mourning; textured by compassion and curiosity, and vibrating with the humanity of its dynamic subjects. Williams' sharp, nimble, tender prose, and her searing art–humming with insight and imagination–speak to veins of human experience so difficult to articulate we often shy away from speaking them at all. But in these dark places, she finds vitality, collectivity, and hope. This book and its subjects will live inside me forever." Leslie Jamison, author The Empathy Exams

What’s Wrong? is author, illustrator, and scientific researcher Erin Williams’s graphic exploration of how the American health-care system fails us. Focusing on four raw and complex firsthand accounts, plus Williams’s own story, this book examines the consequences of living with interconnected illnesses and conditions like

immunodeficiency cancer endometriosis alcoholism severe depression PTSD

Western medicine, which intends to cure illness and minimize pain, often causes more loss, abuse, and suffering for those Americans who don’t fit within the narrow definition of who the system was built to serve—cis, white, heterosexual men. The book explores the many ways in which those receiving medical care are often overlooked, unseen, and doubted by the very clinicians who are supposed to heal them. What’s Wrong? is also a beautiful celebration of nontraditional modes of healing, of how we become whole not because of health care but despite it.

“一部感人肺腑的作品，揭示了我们的治疗方法为何会失败（以及为什么）慢性疾病患者会遭遇的种种问题，并描绘了一个令人绝望的社会现状，反映出我们对最脆弱成员的身体保护不足。” ——梅丽莎·费博，《少女时代》一书的作者，该书获得了国家批评家奖。 “埃里恩·威廉姆斯的《什么出了问题？》是一部扣人心弦、感人至深的作品，探讨了疼痛——个体和集体形式——以及幽默、惊奇和哀悼交织其中。作品充满同情心和好奇，充斥着人类生活的活力、团结与希望。” ——莱斯利·贾森，《同理心检验》一书的作者。 《什么出了问题？》是作家兼插画家、科学研究员埃里恩·威廉姆斯的一部漫画式探索美国医疗体系如何辜负我们的作品。该书聚焦于四个人生经历复杂而真实的第一手案例，以及威廉姆斯自己的故事上。它分析了与免疫缺陷症、癌症、子宫内膜异位症、酒精依赖、重度抑郁症和PTSD等疾病共存的后果。 西方医学旨在治愈疾病并减少痛苦，但却常常使那些不符合医疗系统原本构建以服务的对象——cis白人同性恋男性的狭隘定义的美国人遭受更多损失、虐待和苦难。该书探讨了接收医疗护理的人们往往被忽视、未被看见，并且怀疑他们自己的医疗人员这一主题。《什么出了问题？》也是一本对非传统疗愈方式的大加赞赏之作，它展示出我们之所以能够成为完整的人，并不是因为我们依靠医疗保健，而是相反地，尽管有这些困难。

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