《狂活之声：艾滋病时代日常生活中的反常现象》

Matthew Kelly | 2024 | ISBN: 1978835086 | English | 268 pages | PDF | 2 MB

Series: Critical Issues in Health and Medicine

Four decades have passed since reports of a mysterious “gay cancer” first appeared in US newspapers. In the ensuing years, the pandemic that would come to be called AIDS changed the world in innumerable ways. It also gave rise to one of the late twentieth century’s largest health-based empowerment movements. Scholars across diverse traditions have documented the rise of the AIDS activist movement, chronicling the impassioned echoes of protestors who took to the streets to demand “drugs into bodies.”

And yet not all activism creates echoes. Included among the ranks of 1980s and 1990s-era AIDS activists were individuals whose expressions of empowerment differed markedly from those demanding open access to mainstream pharmaceutical agents. Largely forgotten today, this activist tradition was comprised of individuals who embraced unorthodox approaches for conceptualizing and treating their condition. Rejecting biomedical expertise, they shared alternative clinical paradigms, created underground networks for distributing unorthodox nostrums, and endorsed etiological models that challenged the association between HIV and AIDS. The theatre of their protests was not the streets of New York City’s Greenwich Village but rather their bodies. And their language was not the riotous chants of public demonstration but the often-invisible embrace of contrarian systems for defining and treating their disease.

The Sounds of Furious Living seeks to understand the AIDS activist tradition, identifying the historical currents out of which it arose. Embracing a patient-centered, social historical lens, it traces historic shifts in popular understanding of health and perceptions of biomedicine through the nineteenth and twentieth centuries to explain the lasting appeal of unorthodox health activism into the modern era. In asking how unorthodox health activism flourished during the twentieth century’s last major pandemic, Kelly also seeks to inform our understanding of resistance to biomedical authority in the setting of the twenty-first century’s first major pandemic: COVID-19. As a deeply researched portrait of distrust and disenchantment, The Sounds of Furious Living helps explain the persistence of movements that challenge biomedicine’s authority well into a century marked by biomedical innovation, while simultaneously posing important questions regarding the meaning and metrics of patient empowerment in clinical practice.

系列：健康与医学中的关键问题 四十年过去了，自美国媒体首次报道神秘的“同性恋癌症”以来。在接下来的岁月里，将来的世界流行病被称作艾滋病改变了世界无数方面。它也催生了20世纪末期最大的基于健康的赋权运动之一。跨各种传统领域的学者记录了艾滋病抗争运动的崛起，并记述了抗议者走上街头要求“药物进入身体”的热情回响。 然而并非所有的抗争都会产生回声。1980年代和1990年代时代的艾滋病抗争活动中，包括一些表达赋权的方式与那些寻求主流制药剂开放准入方式截然不同的个体。他们今天大多被遗忘的传统抗争者采用非传统的方法来理解和治疗他们的状况。他们拒绝了生物医学专业知识，并分享了替代临床范式，创建了地下网络以分发非传统的药方，并支持挑战HIV和艾滋病关联的病因模型。他们的抗议活动舞台不是纽约格林威治村的大街小巷，而是他们的身体。他们的语言也不是公共示威中的激动呐喊，而是常常看不见的反叛系统来定义和治疗他们疾病的过程。 《狂热生活的声音》旨在理解艾滋病抗争传统，并识别它兴起的历史潮流。秉持患者为中心、社会历史视角，它追溯了从19世纪到20世纪对健康理解及生物医学观念的流行变化，以解释非传统健康抗争在现代社会中的持久吸引力。通过询问在20世纪最后的重大流行病期间非传统健康抗争是如何繁荣发展的，Kelly 也在试图告知我们关于21世纪第一个重大流行病——新冠病毒抵抗生物医学权威的理解。作为对疑虑和失望的深刻描绘，《狂热生活的声音》有助于解释那些挑战生物医学权威的运动，即使在一系列的生物医学创新中仍延续到一个被标记为生物医学创新的时代；与此同时，它也提出了关于临床实践中患者赋权的意义与指标的重要问题。

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