脑部受伤引发的残疾文化兴起

English | 2023 | ISBN: 9781003428510 | 223 pages | True PDF | 1.98 MB

This book tells the author’s story of her ten-year journey of recovery and identity transformation from Traumatic Brain Injury (TBI). Dr. Dee is a survivor who regained the ability to articulate what many TBI survivors cannot, and this powerful account, provided in real-time, portrays the many seemingly unrelatable symptoms of brain injury and subsequent post-traumatic stress disorder (PTSD). Dr. Dee portrays how events pushed her beyond her limits and resulted in life-altering learning experiences, revealing a process of first figuring out how to live, then making meaning of her struggle.

When half-way through her PhD program, Dr. Dee was crashed into by a car travelling at 65 miles per hour. She suffered a TBI. She lost her ability to read and write. She had a severe speech impediment and significantly impaired memory. Her journey of recovery, described in the book as her trek, spans four significant periods. The road begins with the loss of most of herself. Diagnosis and evolving symptoms show her broken pathway. The author goes through a rocky road of changes in her relationships and reidentification of herself as she finds her life coach, re-learns to read and write, and deals with mental health issues that felt like the end of her recovery. The final trek reveals hope and posttraumatic growth (PTG) and showcases the value of Disability Culture as a source of pride.

This story is for fellow TBI survivors, their caretakers, families and friends, and professionals in the neurorehabilitation field. It brings light to the daunting changes after TBI and give hope for all who tread on this challenging path.

这本书讲述了作者十年来从脑震荡（TBI）中恢复身份转变的故事。Dr. Dee是一位幸存者，她恢复了那些许多TBI幸存者都无法表达的能力，而这篇有力的叙述在实时提供给读者看时，描绘了许多看似无法理解的脑震荡症状以及后续的创伤后压力症候群（PTSD）。Dr. Dee展示了事件如何将她推向她的极限，并导致了一系列改变生活的学习体验，揭示了一种首先学会生活，然后解释自己挣扎过程的方法。 当Dr. Dee还在攻读博士学位的一半时，她被一辆以每小时65英里的速度行驶的汽车撞到。她遭受了脑震荡，失去了阅读和写作的能力，还患有严重的口吃以及显著受损的记忆力。书中所描述的她的恢复之旅跨越了四个重要的时期。旅程从她失去大部分自己开始。诊断与症状的演变展示了她的伤疤之路。作者经历了关系上的变化及重新认识自己的曲折道路，在发现了自己的教练后重新学习阅读和写作，同时处理着那些让她觉得是她康复终结的心理健康问题。最后的一段旅程揭示了希望以及创伤后成长（PTG），并展示了残疾文化作为一种自豪来源的价值。 这本书是为了为TBI幸存者、他们的护理人员、家庭成员及朋友，以及神经康复领域的专业人士而写。它照亮了脑震荡后的巨大变化，并为所有踏在这条艰辛道路上的人们带来希望。

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