《追寻完整心智：重度自闭症和智力障碍者是如何被排除在辩论之外的》[有声书]

English | ASIN: B0CNQ55HKM | 2023 | 6 hours and 44 minutes | M4B@128 kbps | 371 MB

Chasing the Intact Mind: How the Severely Autistic and Intellectually Disabled Were Excluded from the Debates That Affect Them Most The concept of the intact mind, first described in a 2006 memoir, refers to the idea that inside every autistic child is an intelligent, typical child waiting to be liberated by the right diet, the right treatment intervention, the right combination of supports and accommodations. The sentiment itself is not new. Though the idea gives hope to parents devastated by a child's diagnosis, Amy Lutz argues that it has also contributed to widespread dismantling of services badly needed by severely disabled children and their families. In Chasing the Intact Mind, Lutz traces the history of the intact mind concept, explaining how it influences current policy and practice affecting those with autism. Lutz provides a historical analysis of the intact mind narrative and describes how the concept—originally unique to autism—has come to inform current debates at the heart of intellectual and developmental disability practice and policy in the United States. Lutz argues that focusing on the intact mind and marginalizing those with severe disability reproduces historic patterns of discrimination that yoked human worth to intelligence, and that it is only by making space for the impaired mind that we will be able to resolve these ongoing clashes—as well as even larger questions of personhood, dependency, and care.

《追逐完好的心灵：严重自闭症和智力障碍者被排除在影响他们最大的辩论之外》 2006年的一本回忆录首次描述了“完好的心灵”这一概念，指的是每一个患有自闭症的孩子内心中都藏着一个聪明且正常的儿童，等待通过合适的饮食、适当的治疗干预以及支持与适应措施的结合来解放。这一理念本身并不新颖。尽管它为因孩子诊断而受到严重打击的家长们带来了希望，但Amy Lutz认为这也导致了美国智力和发育障碍领域中许多亟需的服务被广泛废除。在《追逐完好的心灵》一书中，Lutz追溯了完美好心概念的历史，并解释其如何影响着当前针对自闭症相关问题的政策与实践。 Lutz对完美好心叙事进行历史分析，并描述这一观念——最初只属于自闭症领域——如今已渗透到美国智力和发育障碍领域的主流辩论之中。Lutz指出，专注于完美好心并忽视那些严重残疾的人所复制了过去歧视模式，这些模式将人类的价值与智力联系在一起；要解决这些持续的冲突以及更大程度上的关于个体身份、依赖性和照料等问题，我们必须为受损的心灵留出空间。

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