embodied叙事：通过伦理治理保护生物信息身份利益

Emily Postan | 2022 | ISBN: 1108483747 | English | 315 pages | PDF | 2 MB

Series: Cambridge Bioethics and Law

Increasing quantities of information about our health, bodies, and biological relationships are being generated by health technologies, research, and surveillance. This escalation presents challenges to us all when it comes to deciding how to manage this information and what should be disclosed to the very people it describes. This book establishes the ethical imperative to take seriously the potential impacts on our identities of encountering bioinformation about ourselves. Emily Postan argues that identity interests in accessing personal bioinformation are currently under-protected in law and often linked to problematic bio-essentialist assumptions. Drawing on a picture of identity constructed through embodied self-narratives, and examples of people's encounters with diverse kinds of information, Postan addresses these gaps. This book provides a robust account of the source, scope, and ethical significance of our identity-related interests in accessing – and not accessing – bioinformation about ourselves, and the need for disclosure practices to respond appropriately.

系列：剑桥生物伦理与法律

随着健康技术、研究和监视的发展，关于我们健康、身体以及生物学关系的信息生成量不断增加。这些发展在如何管理和披露关于我们的信息方面提出了挑战，并且常常涉及对自身描述的个人进行披露。这本书强调了严肃对待我们作为自己身份可能受到的生物信息影响的伦理必要性。埃米莉·波特安认为，在法律保护方面，当前获取个人生物信息的兴趣还未得到充分保障，这些兴趣经常与有问题的生物本质主义假设联系在一起。基于通过身体自我叙述构建的身份图景以及人们面对不同种类信息的经历，波特安填补了这些空白。这本书提供了一份关于我们对自身访问及不访问生物信息的相关身份利益的来源、范围及其伦理意义的有力描述，并强调适当披露实践的需求。

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